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excited to meet others and hear about others stories.

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11:21 pm
January 29, 2011


shorrocks

Member

posts 4

I am a late diagnosed woman with children, and still married.  I also have other physical and emotional/mental things going on.  I feel like I have tried to learn so much about the brain in the last 14yrs, been in many different types of therapies, been on so many different medications, and was grossly misdiagnosed for 10+years.  Even with a correct diagnosis, I have had a tough time maintaining stability, and have tried other things to survive.  Currently I am on nothing but a low dose of a sedative, which I am now going off of too.  Weighing the pros and cons of medications is a tough thing to do.   I am at a point where I do not know what exactly to do now.  I was so excited to hear the Q & A session, and it gave me hope that I am still not 100% out of options.  I learned from Dr. Kenny that I havent tried every avenue.  The fact that he stated that finding a specialist in the adult ADD field, made me feel wonderful.  I appreciated my psychiatrist, but felt like he wasn't even close to grasping my struggles.  This, I should have know right away, when I had to explain to him what the definition of rebound (from medication) was 4 years ago.  He is a head of psychiatry and well known.   I just assumed he had to know all the aspects of the brain.  I only recently accepted that he does.  I am quite gun-shy when it comes to doctors, therapists, and psychiatrists after 14 years of struggling, and being mis-treated, mis-diagnosed, and sometime left with a feeling of hopelessness, that no one would ever understand what it is like to go through so much, and be proud to survive, but ashamed at times too, of how I did.  I am a survivor though, and will continue to try to find good ways to keep surviving.  Like I said, the Q & A certainly gave me more hope.  Thanks DR. Kenny!!! 

2:46 pm
November 17, 2011


Iguanatom

New Member

posts 1

Hi Sharrocks, I share your caution to working with many doctors and therapists.  I have had too many that either were not on the ball or never learned what ADD/ADHD really meant.  I interview potential healthcare providers for myself as stringently as I do for my kids now, but with insurance dictating so much of what will and won't be covered it's difficult. 

I had a fairly stable medication and life when Cylert was on the market, but once that was removed due to liver failure, it's been a struggle at best. I never had any issues with it, but I understand the fear of lawsuits with liver failure going on. The challenge has also increased with now being married and having children and trying to be consistent rather than my standard yo-yo motion of my life.  I use a number of alternatives including acupuncture and fish oil, in combination with Concerta and Ritalin (methylphenidates).  I have found that I need less drug amounts to receive the benefits and have less negative side effects since adding the fish oil and acupuncture, but it still feels like a very jerry-rigged fix compared to what I had on Cylert.

Good luck in learning what you can about your mind, but I think the more you learn, the more you notice there is out there to learn. Smile

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